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Showing posts with label preemie. Show all posts
Showing posts with label preemie. Show all posts

She'll Die

Friday, April 12, 2013

April 12th is a day that brings not only joy into my life, but memories of heartache and uncertainty.

You see, five years ago today, the surgeon that was about to bring my granddaughter into the world bluntly said, "She'll die."

When I fist saw her lying on the table, minutes after being freed from what had been her home for less than 26 weeks, I knew she would die.

Barely 2 pounds, and 14 inches long, she was motionless, purple and I felt a fear I'd never before experienced. We couldn't lose another grandchild, my daughter couldn't have another baby die.

But the baby surprised everyone, and not only survived, but thrived.

Today she is five. She is a fighter. She is a survivor. She is the great granddaughter my mother had hoped for, but didn't get to see. Maybe God allows my mom to peer down and witness the child she'd longed for.

Here it is in pictures. The survival of Anna-Grace Elizabeth.



My heart stopped

Her daddy's hand






25 and 5/7 weeks







Nana holding her and her Papa's hand






First day home, being held by my Princess, CoCo

Uncle Michael admiring the Miracle

Jakob holding her for the first time.

Papa and the tiny bottle



Surgery for heart failure at 8 months



Wearing her great grandmother's cow girl boots!




Last week
 

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No Words

Tuesday, July 12, 2011

Most of you know of the baby Anna-Grace.Today was her three year appointment with her cardiologist. When she was 8 months old she was in heart failure and had to have open heart surgery. This was after being born three months early and weighing in at only 2 pounds.

There are no words to describe seeing her at the doctor today so healthy and alive.



you can barely see her scar


There are no words to describe watching her eat a graham cracker with peanut butter while she held her purple balloon.


There are no words to describe watching the child that was to die wearing my shoes this afternoon.


There are no words I can write, or speak, that can express my gratitude to the doctors and nurses that saved her life. Thank you just doesn't seem to be enough.

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I Knew She Would Die

Monday, April 11, 2011

As soon as I saw her I knew she would die. She had just been cut from my daughter's belly and was barely 2 pounds. In an effort to save the baby and my daughter the decision had been made to take the tiny girl child from what she had known as a safe place and bring her into the world of tubes, ventilators and doctors.

My daughter, Karli, had been having contractions since she was 12 weeks pregnant. She was on a first name basis with the Emergency Department and had the best specialists in the Northwest caring for her. The pregnancy was terrible and marred with bleeding, hospital visits, shots, specialists and fear.

She was only 26 weeks pregnant when Anna-Grace was taken. I remember watching the doctors and nurses try to put the ventilator into the tiny angel. She was so still, so purple, so lifeless. The tears that stained my face were tears of losing another grandchild, tears of grief, tears of a sadness I'd hoped no one else would ever feel.

The doctor that delivered her had prepared us for her imminent death and there was no joy on his face as he quickly cut the baby from my baby.




That was three years ago tomorrow, April 12. Anna-Grace surprised everyone. She was a fighter, she was a Diva, she was going to make it.

Karli seeing her baby for the first time

Holding Nana's hand



Wearing her preemie hat

Uncle Michael holding her on her first day home


Getting bigger

Then when she was 8 months old she was diagnosed with heart failure and was scheduled for an immediate surgery to repair her failing heart. Once again we prepared to lose her.

Preparing for surgery


Right after surgery

Baby Diva toes


She survived. She thrived. She kicked ass.

Today she's on the growth chart. She's only about 40%, but she's ON the chart. Before surgery she was no where close to being on the chart, we thought she was dying. She had other plans.

Today we have a hellacious, spirited, baby Diva. She throws fits, she screeches, she whines and she demands fingernail polish. But we have her.

Here are a few more pictures celebrating the spirit and fight of my granddaughter.


Big brother Jakob



First pedicure with Nana



With cousin Madeleine
Just last week. Look at the smile. The smile of a survivor.

Happy third birthday Anna-Grace Elizabeth. Your Nana loves you.

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